Strong Genetic

Leigh Syndrome, French Canadian Type (LSFC)

GeneLRPPRCrsIDrs80338777InheritanceAutosomal recessiveCarrier frequency~1 in 23 in Saguenay-Lac-Saint-Jean (Quebec), rare elsewhereSystemCarrier Screening

Summary

LSFC is a mitochondrial disorder caused by deficiency of LRPPRC, a protein required for proper assembly of cytochrome c oxidase (complex IV of the mitochondrial respiratory chain). This impairs cellular energy production, particularly in the brain and liver.

Practical takeaway

This is primarily relevant if your partner is of French Canadian (Saguenay-Lac-Saint-Jean) descent. Carrier testing is available. Realised does not calculate reproductive risk or advise on reproductive decisions.

Evidence detail

What Carrier Status Means For You

You are not affected. One working copy of LRPPRC is sufficient. Standard 25/50/25 recessive inheritance applies.

Population Context

The A354V founder mutation is concentrated in the Saguenay-Lac-Saint-Jean region of Quebec, where carrier frequency reaches ~1 in 23. This remarkable frequency reflects the founder effect in this geographically isolated population. Outside French Canada, LRPPRC-related Leigh syndrome is extremely rare.

Limitations

23andMe tests 1 LRPPRC variant. Coverage is limited to the French Canadian founder mutation. Classic Leigh syndrome involves 75+ different genes — this entry covers only the LRPPRC-specific French Canadian form.

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